Poor Ben. Not even six hours post chemo and he is writhing in pain. Literally writhing in pain. Worse then this:
Don’t ask me why this always happens. No one seems to be able to give us an answer. It just seems as though his pain is greatly exacerbated by the chemo. The meds really don’t touch it. It might even hurt this much:
Yuck. Anyway, to save myself time I am going to copy most of my recent FB post into this blog, since it has an outline of the better part of our day. Here it is:
Isn’t this what everyone does on a Monday afternoon? Mexican food followed by chemo.
As usual, Ben stays in good spirits (well, at least for the camera, but that’s something) despite the issues today.
For example, our first appt was two hours late by the time Dr Cocky McArrogant breezed into the room for 30 seconds and diagnosed Ben’s hearing problem without asking any questions. Much like Crown Counsel, Dr Imso Important clearly hadn’t read the file before walking in the room, because you know his time is much more important then ours.
After that we had issues with Ben’s consent forms for the clinical trial. The same forms that I handed in a couple of weeks ago and said “please please please don’t lose these. They are very important.” Yeah, well, I’m pretty sure the cancer agency “misplaced” them and totally forgot he was supposed to be entered in the POG trial at all. I kicked up some dust today and remedied that. Supposedly his biopsy will now be next week. It should have happened a week ago, so I guess we’ll see.
Anyway, he’s sitting in the chemo chair as I write this. The drama continues, as the chemo nurse had tons of problems getting the IV in. (Cal Traversy, please tell Whitney she needs to transfer to VGH and take care of Ben). Apparently Ben has “crooked veins.” Seriously. Crooked veins. Who has crooked veins??!! What kind of genetics did I marry into?!
He’d better not pass on any of these weird defects to our kids. Crooked veins, funky chromosomes… Ben Saint-Onge I may sue you for failing to provide full disclosure before our wedding day! You definitely led me to believe you were pretty close to perfect at the time. 😏. Now it is too late to toss you aside. I am apparently stuck with you. The statute of limitations for suing one’s spouse for failure to provide full disclosure runs out at the 20 year mark. Too bad for me.
There was discussion about putting in a portacath for the next while so they can stop poking him. Also, the drugs cause a lot of pain in his hands so a portacath may help with that since the drug won’t go into his hand. If you want to see how much his hands hurt from that damn drug, try patting him gently on the hand under the guise of comforting him. You will learn some new swears. Lol.
There will be no personal visits for awhile – Ben’s white blood cell count was down to 1.3 today. It is very likely to now go right down to zero which makes him extremely susceptible to infection. We have BIG plans coming up and we don’t want them messed up! So texts, phone calls etc are all welcome – just no personal visits. Ben does read his texts and emails….sometimes it takes him a while to respond. Please don’t take that as a sign he doesn’t want to hear from you….he’s likely just sick and / or trying to rid himself of pain. In fact, random “feel better” texts, stupid jokes and / or funny pictures that make him laugh will be extremely helpful in keeping his spirits up this week. His body is doing a lot of work right now:
So thats it for now. Ben will likely be preoccupied the next few days with feeling really crappy, and I will likely be preoccupied with cleaning up vomit. Perhaps after that, Ben will feel well enough to disclose Surprise #2. In the meantime, lets just say that we intend to
PS. We have decided to always pronounce ‘chemo’ with a “ch” sound. Like CHew or CHoice. Because it makes us laugh. So when you see me write “chemo”, make sure you read it as you know we are saying it. It takes away the seriousness of it. And we are tired of ch–ch–chemo being serious. (You pronounced the “ch” that time, didn’t you? Yeah you did. 😉)